Parent Advocacy is the Key
Knowledge of student needs, information about possible interventions in
the schools as well as in the community, plus commitment and
perseverance, almost invariably lead parents and teachers to successful
educational interventions for students who are struggling academically.
Sometimes parents and school staff collaborate successfully, and
sometimes they don't. Either way, a parent's persistence and thoughtful
involvement is often the key, in the long run, to turning negative
learning patterns around. The following letters from parents emphasize
this point.
Dear Beth:
I read the recent letter sent to you from a frustrated parent of a
middle school student with learning differences. My son had a similar
experience in his middle school years at a public school. I found that
the school was not really equipped to give my son the proper attention
he required to succeed. To give him the attention he needed would have
required the school to commit more time, effort and consequently money.
They were not prepared to do what was necessary and at the Planning and
Placement Teams (PPTs) they insisted that he was making progress.
My wife and I could not see the progress. So we had him privately
tested and, unfortunately, the testing proved that the school was
misleading us to avoid providing him with the proper support. My son
finally asked to be taken out the school as his self-esteem was
diminishing. I caution the mother who wrote to you that once her
child's self-esteem is lost all is lost. This leads to the student
becoming more of a problem child in class to cover up for his inability
to keep up with his classmates.
I placed my son in a private school where he is getting the proper
support. The public school was required to provide partial assistance
for this cost.
I know most parents are concerned about the cost of a college education.
But if your child with LD (Learning Differences, I call it, not
Disabilities) loses his or her self-esteem he or she will never make it
to college or succeed in college. Some parents might need to consider
transferring their child out of the public school system if proper
learning support isn't provided. My son is doing great in school now and
is looking forward to attending college.
***
I have only now gotten a specialized reading program for my son at the
end of his 9th grade year. He has a Learning Disability (LD) and
Attention Deficit Hyperactivity Disorder (ADHD).
Part of the problem is that special education teachers, like me, are
trained to be good generalists in our field. We can generally identify
if a child has a problem, but we are not trained or encouraged to learn
how to diagnose more intently or accurately. We are given the basics of
what we need to know in order to teach. For most kids, this is probably
enough. (There are so many good teachers out there!) However, what we
as teachers and parents don't know, can hurt our children.
The money also comes into play, regardless of the affluence of a
community.
Then there is opinion. I agree that parents know their children the
most intimately and perhaps that translates to best. However, a good
teacher also knows each child well, and we need to work together as a
team. Any team process is hard without mutual respect. This is where I
sometimes see that Administration gets in the way. I wonder if it isn't
a matter of a need to control the situation rather than let the people
who know the child the most, work together to create a plan.
Next: Who is an expert? What is an expert? Schools tell us their staff
are the experts and they don't need anyone else. Either schools
usually don't want to spend the money or, perhaps it is that in doing
so, they fear the perception of losing their position as the
"educational authority," so a real expert isn't brought in.
Who suffers? Our children.
Then there is the pure fatigue of the struggle and fight. No parent
should have to fight to get an appropriate education for their child.
Schools do not do an even adequate job of telling parents what their
rights are. If parents have the knowledge and tenacity, they are better
off, but even then, I strongly recommend having a parent mentor from the
Learning Disabilities Association in Hartford. Even with all of my
knowledge and strong personality, I found my parent assistor an
incredibly valuable asset.
I asked the school if they want to pay now or do they want my child to
pay for the rest of his life? I have asked if they were going to be
proud that they would allow a student to graduate as a functional
illiterate because he has a learning disability and they don't know how
or what to find out to teach him and others like him. (They had no
goals for reading, writing, spelling or math).
My son is now getting the specialized reading program he needs. It is
research based and proven. It is being provided by a specialist hired
from outside the school. They also offered him a special math tutor to
held him master his skills and learn better ones. Not just coping
techniques. This accomplishment took many months, lots of work, lots of
writing and documenting. Yes I did lose some sleep. I am proud of my
son for sticking up for himself and working with me to understand what
he needs and fighting for it.
No parent should give up. The information and educational techniques
are out there. They need to be identified and planned for. It can be
done! Teachers and schools do care. Parents and schools need to work
together better, to assure that our children get what they need.
***
Please send questions or comments to bbruno@snet.net.
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